Public Access to Health Information:
Providing Trusted Information to All

June 15, 2023. 12:00-13:00 EDT


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About this webinar

In August 2022, the White House Office of Science and Technology Policy (OSTP) issued new guidance for federally funded research, mandating the implementation of immediate public access consistent with NIH policy by the end of 2025. With a growing shift towards public access at a global level, this webinar brings together leading experts to discuss the implications of this move and how we can ensure public access for all.

This webinar will take place on June 15, 2023. 12:00-13:00 EDT.

Chris Winchester, D.Phil, CEO, Oxford PharmaGenesis

Chris Winchester is CEO of Oxford PharmaGenesis, an award-winning Health Science communications consultancy with over 500 employees in Europe, North America and Asia Pacific. Chris studied Biochemistry at St Catherine’s College, Oxford, leaving with a DPhil in 1997. He has supported the dissemination and communication of research on behalf of pharmaceutical companies, professional societies and academic groups, and he has co-authored observational studies, systematic reviews and Delphi consensus development processes, including studies examining the impact of professional medical writing support on reporting quality. Chris is a Co-founder of Open Pharma, a Director of Oxford Health Policy Forum, an Associate Fellow of Green Templeton College, Oxford, a Director of the Friends of the National Library of Medicine and a past Chair of the International Society for Medical Publication Professionals.

George D. Lundberg, MD, ScD

Contributing Editor, Cancer Commons, Editor at Large, Medscape, Clinical Professor of Pathology, Northwestern, Executive Adviser, Cureus, President and Board Chair, The Lundberg Institute and Editor in Chief, Curious Dr. George

Public access for publicly funded research

Rationale for and development of the OSTP public access mandate, Development of existing NIH policy, Alignment with other global initiatives, e.g. policies of Gates Foundation and Wellcome Trust, plus Plan S

Lisa Federer, Ph.D., MLIS, Acting Director, NLM Office of Strategic Initiatives

Dr. Lisa Federer is the Acting Director of the National Library of Medicine’s Office of Strategic Initiatives, serving as principal advisor to the NLM Director on strategic directions of NLM, including open science, analysis, evaluation, and reporting on NLM programs and activities. Prior to this position, Lisa served as NLM’s Data Science and Open Science Librarian, and previously served as the Research Data Informationist at the National Institutes of Health Library, where she developed and ran the Library’s Data Services Program. She holds a PhD in information studies from the University of Maryland and an MLIS from the University of California-Los Angeles, as well as graduate certificates in data science and data visualization.

Public access for industry-funded research

Drivers of public access for commercially funded research, lack of a level playing-field and encouraging vs mandating public access – progress to date

Catherine Skobe MPH, MT(ASCP), Senior Director, Publications Innovative Solutions Lead, Pfizer

As Senior Director, Publications Innovative Solutions Lead, Catherine co-leads the Publications Management Team (PMT) within Pfizer’s Worldwide Medical and Safety organization. She currently oversees various digital innovative projects led by the PMT which span across the enterprise. She co-leads several committees at Pfizer including the Publications Technology Steering Committee, the Publications Collaborative Board with patient advocates, and the cross-Business Unit Scientific Publication Chair and PMT Forum. Additionally, she represents Pfizer on Open Pharma which is a multi-stakeholder collaboration focused on innovations in medical publishing and is a longstanding member of ISMPP. As an advocate of accessibility to scientific research through publications, she supports initiatives that improve equity and diversity in global public health.

Prior to joining Pfizer in 2007, Catherine was employed by the University of North Carolina Hospitals, Becton Dickinson VACUTAINER Systems, and IntraMed – a division of Sudler & Hennessey. She holds the following degrees: MPH with a concentration in Community Health Education from Hunter College School of Urban Public Health and BS Medical Technology from the University of North Carolina at Chapel Hill.

Patient perspectives

What does public access mean for patients? How does public access help patients access high quality information and avoid misinformation?

Durhane Wong-Rieger, PhD, President & CEO, Canadian Organization for Rare Disorders

Dr. Wong-Rieger is Chair of Rare Disease International, Chair of Asia Pacific Rare Disease International, Treasurer of United Nations Nongovernmental Organization for Rare Diseases. Chair of Patient Advocates Constituency Committee of the International Rare Disease Research Consortium, Patient Advisor to the APEC Rare Disease Network, member of the Editorial Board of The Patient- Patient Centred Outcomes Research, member of the Global Commission to End the Diagnostic Odyssey for Rare Diseases and member of Health Technology Assessment International Patient /Citizen Involvement Interest Group.  

In Canada, she is President & CEO of the Canadian Organization for Rare Disorders, Chair of the Consumer Advocare Network, President & CEO of the Institute for Optimizing Health Outcomes and Chair of Canadian Heart Patient Alliance.  She is a certified Health Coach.

Dr. Wong-Rieger has served on numerous health policy advisory committees and panels and is a member of Genome Canada Steering Committee for the Rare Disease Precision Health Initiative.

Durhane has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada.  She is a trainer and frequent lecturer and author of three books and many articles.

Brief dialogue / commentary

Lynne Holden, MD, Professor, Emergency Medicine at Albert Einstein College of Medicine and President, Mentoring in Medicine, Inc.

Chris Winchester, D.Phil, CEO, Oxford PharmaGenesis

Impact of public access on publishers

Opportunities and challenges for publishers

Angela Cochran, VP of Publishing, ASCO

Angela Cochran is the Vice President of Publishing for the American Society of Clinical Oncology. Previously, she was Managing Director and Publisher at the American Society of Civil Engineers. She has served in the roles of Associate Publisher, Journals Director, Production Director, and Journals Production Manager for ASCE. She was a Managing Editor at the American Cancer Society and a Production Editor for Appleton & Lange and at Pearson Education. She is past president of the Society for Scholarly Publishing and the Council of Science Editors. She is the associate editor and a regular contributor of The Scholarly Kitchen.

Impact of public access on researchers

Libraries as a gateway to public access

Introduction to the publisher-librarian landscape and practicalities and challenges of public access for librarians

Gene Springs, MLIS, Collections Strategist and Associate Professor, The Ohio State University

Gene Springs currently serves as a co-lead of The Ohio State University Libraries’ Transforming the Scholarly Publishing Economy strategic initiative and is a member of the Big Ten Academic Alliance’s Library Initiatives Sustainable Publishing working group. Gene was previously a Business Librarian at The Ohio State University Libraries and Rutgers University Libraries.

Live Panel discussion

Potential solutions and future directions in public access and combatting medical misinformation

Gwen Evans, Vice President of Global Library Relations, Elsevier

Gwen Evans joined Elsevier in 2020 as the Vice President of Global Library Relations. Prior to her current
role, Gwen spent seven years as the Executive Director of the state agency and library consortium
OhioLINK. From 2006 to 2012, she held the position of Associate Professor and the Coordinator of
Library Information and Emerging Technologies at Bowling Green State University.
Gwen has extensive experience with all types of academic libraries and institutions: academic content
contract negotiations on the consortial level; statewide affordable textbook initiatives including OER;
and leading, maintaining and creating shared collaborative services in a technology-driven environment.
She was also active in the International Coalition of Library Consortia, serving as Chair of the
Coordinating Committee. Her recent publications include an Ithaka S+R issue brief co-authored with
Roger Schonfeld, titled “It’s Not What Libraries Hold; It’s Who Libraries Serve. Seeking a User-Centered
Future for Academic Libraries” and “Creating Diversity in Libraries: Management Perspectives” in Library
Leadership & Management with co-authors Mihoko Hosoi and Nancy S. Kirkpatrick.

Angela Cochran, VP of Publishing, ASCO

Lisa Federer, Ph.D., MLIS, Acting Director, NLM Office of Strategic Initiatives

Catherine Skobe MPH, MT(ASCP), Senior Director, Publications Innovative Solutions Lead, Pfizer

Gene Springs, MLIS, Collections Strategist and Associate Professor, The Ohio State University

Webinar generously sponsored by: